Hello Everyone...

I haven't posted for quite some time, although I log in regularly to enjoy a read. Perhaps I should start with some background:

I've had RA for over 25 years and I am currently only on MTX 20/25mg injections (having exhausted most of the DMARD's), together with Diclofenac when required + steriods during uncontrollable flare-ups.

This morning my Consultant suggested it may now be time to try anti TNF's. Quite frankly I'm a little apprehensive, although I should probably be relieved and grateful that this stage has finally been reached.

I have just watched Alice's interview on YouTube, which was very interesting indeed, but I would also welcome comments from anyone who has experienced the different types of anti TNF drugs currently available.

I guess my post is due to fear of the unknown and I would be so grateful for any suggestions or advice.

Thank you...

Ellie

Hi Ellie, Im in the same position as yourself, just about to have my second das score appointment. Feeling very apprehensive like you and dont know what to expect! Have to say though Ive heard good things about anti tnf and am really hoping that I can get some quality back into my life!

Good luck with yours let me know how you get on,

Love Heatherxxx

Thank you for your kind responses and for sharing your own experiences.

Part of me was looking forward to the day I may be offered the chance of trying these drugs but yesterday, when my Consultant told me that this was now the route we should be taking, I came away with a feeling of apprehension, which I have never felt about new treatments - I've always been eager to try something new.

However, it would appear all this was a little premature as, after posting to you, I received a telephone call from my Consultant informing me that my DAS score, on the day, did meet with the strict guidelines that would allow access to these new drugs.

Now I'm so disappointed, despite my previous uncertainty, and feeling rather glum today but I expect there will be another opportunity in the future - I'll just have to be patient (excuse pun).

Thank you all again for your support - very much appreciated.

Ellie

Hi All,
First time on the forum so hope I do this properly. I have been on Enbrel since 2006 and have never looked back. I originally tried Anti TNF tx when offered a chance to be on a trial for Remicade 10 years ago. It was brilliant also so when I qualified for Anti TNF in 2006 (after trying everything else and nothing worked). I've had hardly any problems on Enbrel - and now only have the odd flare which lasts about a day. My quality of life is good, I work full-time, go to the gym, lead an active busy life. (ok, I pay for overdoing it now and again - but there you go!

My advice would be if you have the opportunity to go on it, don't hesitate - the benefits should outweigh any risks and your quality of life will be greatly improved!